Thanks for your reply Hopeless. Isn't it horrible when you're in a no win situation? My drugs don't contribute to my fatigue - just a bit of Prednisolone & Mycophenolate. I take pain relief very rarely and only when the flares stop me sleeping, generally I prefer to keep moving, constantly, as this keeps the pain to a minimum. I've never felt so unwell as I have done these past couple of years but the exact cause is a puzzle. My chest tires so quickly that even talking or drinking a cup of coffee will leave me short of breath but my PFT's are only a little lower than they should be. I don't want to attract a dx of Fibro unless it is to my advantage and my fear is that with a sero neg CTD, too much will be attributed to the Fibro thus threatening the DMARD therapy that I definitely need.

Like you, the body I used to inhabit is a distant memory but I want it back . . .do you have any thoughts as to what could be causing your symptoms? Good luck and take care. Clare xx