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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Nice to meet you Natalie :)
My mouth is still hanging open from your PS note.....what type of facility were you in ? I am totally shocked by this treatment. WOW !
I have severe small fiber neuropathy. This came on full force one month after finishing my last chemo treatment (taxol-carbo) for a rare uterine cancer. It's Papillary Serous and usually found in the ovaries. I was lucky that it had not gone through the uterine lining.
I went into chemo as a pre-diabetic and had some small issues with rising blood sugar during treatment and a few tingles in the feet and mouth. As I look back now I already had symptoms of SFN that I had just brushed off for years. The dr's all lean toward diabetes as the reason for my SFN but I believe it had to be a combination of the two. I think the chemo just escalated the SFN. My last chemo was March 2013 and I'm in remission now. They were checking me every 3 months but we're going to 6 months now.
I said all that  to get to the point that I have severe pains that come and go lower than yours. Right above my pelvic bone that goes from one side to the other when it acts up. I had a spell a few weeks ago and walked bent over all day and then it took 2 or 3 more days to totally go away. That's the worst spell I've had.
They cannot find a reason for these pains. I've had CT's, ultrasounds, x-rays and so on but everything comes back negative. Some dr's think scar tissue, some my SFN and one other thing I can't think of right now.
Not sure any of this info will help you but we don't have many chemo PN'ers on here so I wanted to respond to you. At least I don't think we do 
Take care and I know others will come along and offer other info.
Please keep us posted.
Debi from Georgia
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