Thread: Topical Meds?
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Old 11-01-2015, 08:06 AM
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DejaVu DejaVu is offline
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DejaVu DejaVu is offline
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Join Date: Apr 2008
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Heart Thanks, Lara!

Quote:
Originally Posted by Lara View Post
Interesting situation with the Clonidine. My son had a terrible reaction to it and almost the reverse of what's happened to you by the sound of it. He was on Clonidine when he was little but wasn't on it for all that long. Maybe a few months in total and the exact dose I forget but it was pretty low and was a bedtime dose only. It used to be a first line medication in children who had severe tics plus he had migraines, sleep issues and suspected ADHD at that time. The Doctor was trying to see if it would help multiple problems.

He had a terrible time on it. He was so pale and he perspired all the time. His skin was cold and clammy and was very tired all the time even though the dose was night time dose only. He had to be weaned off it slowly. It didn't help any of his symptoms at all. In fact, I think it made his BP wayyy too low.

I hope you get some relief DejaVu. I totally understand that this is prescribed for a totally different issue for you, but just wanted to tell you about our experience.
Hi Lara,

Thanks so much for sharing.

I am sorry your son has had so many challenges. Must have been very concerning to him and to you, as I know you are a very involved and conscientious mom.

Side-effects and/or drug reactions occur no matter the reason they were prescribed. Thus, your son's reaction to the med is pertinent, of course.

Clonidine does make me very tired. In all fairness, I must mention I am adding clonidine to a mix which I find fatiguing as it is. I take opiates, Depakote, prednisone as the major daily meds. I am not sure just how much Lovenox is also playing into these side-effects. Lovenox was introduced shortly after the clonidine was introduced. The current plan for Lovenox is a total of 15 days only, as long as it clears up the thrombosis during that time period.

I guess I should just relax with it all. I have daily responsibilities though and am finding it difficult to impossible to attend to them. I am finding it very difficult to simply attend these medical appointments. I come home from one appointment and am in extreme pain and exhausted. The more I walk on my feet, the worse it gets. I have found wheelchairs very helpful, especially at the large hospital.

I may look into getting some help here in the house if this continues.
I am often one to cook meals for people in need of help or elderly/disabled people living alone in our neighborhood.
I can barely make it to the kitchen for anything.
We have company arriving visiting from another state. They will be here brunch tomorrow morning.
I have told them I cannot make/cook brunch tomorrow morning. They will work it all out with my husband, as he will be home all day tomorrow. We really want to see them while they are in the area.

Ooops. I think I may be rambling.

I always enjoy hearing from you, Lara. I hope you and your son are well.

Thanks again!



DejaVu
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"Thanks for this!" says:
bluesfan (11-01-2015), Lara (11-01-2015), Littlepaw (11-01-2015)