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Senior Member
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Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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Senior Member
Join Date: Feb 2011
Location: Shenandoah Mountains, VA
Posts: 1,250
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I ditto the suggestions by MrsD for the immunologist consult. With your history of infections you may have a primary immune deficiency. Some very simple labs can determine if this is likely (IgG subclasses for one).
I know you had a skin biopsy, but if memeory serves me correctly, they did NOT check the morphology (condition of the fibers). It is possible to have normal nerve fiber density yet damage fibers...that can be causing the neuropathy. Biopsy tissues are typically saved and stored, so you can likely have it re-examined at another facility to check for segmented, swollen or tortuous fibers. This would at least help define your symptoms and take the 'it's all in your head' off the table.
The immunologist will also like have better input on the paired Oligloclinal bands...which I think definitely needs to be followed up on.
Someone needs to be looking outside the box. I agree that doctos don't like getting other doctors unresolved problems...and usually dismiss them instead of taking the time to reinvestigate to find what the other doctors missed.
I was hoping you would have better resources and doctors after you moved. Doesn't look like it has started out that way...but lets stay optimistic that someone is going to open the door for you (maybe that immunologist).
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