Well it's been 3 months and today he had his visit. She took some blood and is running some tests.

She also made him walk a straight line, do some balancing stuff and said "the IVIG is working, you can now walk a straight line". He really couldn't do this the last time. She is also reducing the IVIG from two times a month to one time a month. She says he's improving.

They took his blood pressure and it was very low. It was 80/44. They took it in each arm. It was different each time. We are also going through a heat wave and he never uses any salt, so I gathered that his sodium level might have been depleted ?????? Maybe???? He was fine when he got home and I just made him a nice protein shake. He feels fine.

Oh, she offered him a new PN drug (he forgot the name). He declined. He said "well, my wife has neuropathy, and she takes megadoses of Methyl B-12". And the doctor said "she should not be taking megadoses of Methyl B-12, it's no good for anyone". He then said "but she's better". And the doctor said "well, everybody's neuropathy is different". She said "any B-12 reading over 500 is fine"

She is running all kinds of blood tests on him including B-12. He asked if her office could mail him his tests results and she said "no, you have to pick them up".

Wow, times have sure changed.

Anyway, Alan wants to start taking Methyl B-12. He doesn't want to take any pain meds for his pn and he hasn't for a few years. His pn is worse when he lays down or sits down but sometimes it's not as bad as other times.

Do any of you think he should start taking the Methyl B-12??

Thanks much.

Melody