New Member
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Join Date: Oct 2015
Posts: 5
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New Member
Join Date: Oct 2015
Posts: 5
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Hello pogo
From the mayo clinic list of causes of NPH .... #1 obstruction #2 poor absorption #3 over production.
This is what I have found out
A clue that the problem is a blockage is if the lateral and third ventricles are full of fluid look for a blockage at the aqueduct.
Do not accept the idiopathic BS. I was quote idiopathic for 5 years. Mri with contrast and flow study not only showed the narrow aqueduct but a more rare condition called aqueductal web. Technically I'm partially obstructed but still communicating just not to the best ability lol kinda like a car that needs a hose replaced car runs just not great. The problem with NPH I don't get the headaches very often. what I have is just an overwhelming sensation of pressure that builds up all day and I get very sleepy. When my head hurts I go to sleep which is why they diagnosed me with hypersomnia. My gait changed but not in the way the books describe and there is no swelling of the optic nerve ( i was told mine is long and skinny) I do have sudden onset pigmentary glaucoma however, they say there is no connection ( one day I could see in any condition or print size the next everything is a blur) I keep looking things up. Like I constantly feel the need to crack my neck... Right where skull meets spine. Pain that runs along the shoulder blade (un relieved and it's not from sleeping wrong)
Anyway I didn't like the IDIOTS saying idiopathic which is a big word for I don't know.........if they had done further testing instead of the diamox and wait and see approach for 5 years I would have had a better quality of life instead of sleeping thru and being in a general fog not getting much of anything done.
Keep fighting for further testing there is different test to monitor the absorption rate if they suspect that. I agree with you shunt is not an option that sounds good to me. Too many post op revisions and problems for me.
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