Quote:
Originally Posted by -Spike-
I did the trial and ended up having it fail big time. Yet, let me say this, I highly recommend you give it a try. Even though my experience was extremely physically painful, I'm glad that I at least tried. Because had it worked, I truly believe my pain would have greatly decreased and I would be much more active than I am now. And this could really help you in your work situation, if successful. One other thing. Yes, give it a great deal of thought. BUT... You are correct, you do have a short time frame in order to set this up and do, for the reasons you mentioned concerning your insurance, and given the fact that you must squeeze a psych eval in the time frame between now and when the surgery must happen, which is before the end of the year. So, you'll have to get after it quick, IF YOU do indeed decide to do it. If it were me, I'd go for it! AGAIN.. I'm no medical professional. I am just speaking from my own experience.
-Spike-
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Dearest Juliek72
As others have suggested, please do your research.
I wish I had. I was diagnosed with CRPS Type II upper right extremity end of '12. The last hope for pain relief was the SCS. I so trusted my Doctor that I asked no questions and he offered no CRPS INFO. I just watched the video the company puts out. The trial was 4days in summer of '13. The pulsations offered enough 'relief' that my Dr and I decided to go forward with the permanent. BUT just the painful trial procedure caused burning and pain to spread to left forearm, top of left hand, tops of both feet, and both shins.
To this day, I become so angry at myself for not stopping there. I was know i was desperate for relief, to go back to work, ect ect.
I am going to skip to last week, 10/15, as the time in between is complicated and not pleasant. (The SCS offered NO pain relief like the trial AT ALL. It caused MORE.)
I FINALLY had the SCS and all the hardware extracted. I am hoping the pain i am feeling (burning, aching, stabbing, at times intolerable) at the two incisions sites are just from the surgery and not CRPS upped intensity or spread.
Also, the surgeon said the removal surgery would 'be easy.'
Easy for him!! This has not been easy for me at all.
I was not going to write anything but then i thought, I wish i had read someone else's story. Someone with CRPS, not a fluff piece by the company.
I will be happy to answer any specific questions, Julie, if you have any.
For me the SCS was not a big decision. It should have been.
I wish you well.