Quote:
Originally Posted by mizoni
Dearest Juliek72
As others have suggested, please do your research.
I wish I had. I was diagnosed with CRPS Type II upper right extremity end of '12. The last hope for pain relief was the SCS. I so trusted my Doctor that I asked no questions and he offered no CRPS INFO. I just watched the video the company puts out. The trial was 4days in summer of '13. The pulsations offered enough 'relief' that my Dr and I decided to go forward with the permanent. BUT just the painful trial procedure caused burning and pain to spread to left forearm, top of left hand, tops of both feet, and both shins.
To this day, I become so angry at myself for not stopping there. I was know i was desperate for relief, to go back to work, ect ect.
I am going to skip to last week, 10/15, as the time in between is complicated and not pleasant. (The SCS offered NO pain relief like the trial AT ALL. It caused MORE.)
I FINALLY had the SCS and all the hardware extracted. I am hoping the pain i am feeling (burning, aching, stabbing, at times intolerable) at the two incisions sites are just from the surgery and not CRPS upped intensity or spread.
Also, the surgeon said the removal surgery would 'be easy.'
Easy for him!! This has not been easy for me at all.
I was not going to write anything but then i thought, I wish i had read someone else's story. Someone with CRPS, not a fluff piece by the company.
I will be happy to answer any specific questions, Julie, if you have any.
For me the SCS was not a big decision. It should have been.
I wish you well.
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I posted a more complete version elsewhere on the site. I'll just add this to my post here, since I was quoted. The minute they flipped on the switch to my SCS post OP, I screamed, cried, yelled, sobbed, and wept for 17 straight unforgettable hours. I didn' know that someone could hurt that badly and actually live! t prayed to God that He would end my life that day. The woman that I was with cried as she watched me suffer, knowing all she could do was pray. Yet, had I not tried, I would kick myself to this day for not giving it a shot. Everyone is different. Some get good results, others of us-not so good. Julie, the decision is yours. According to my doctor, this surgery is successful in 85% of the cases it is tried upon. Yet, as was my case and others too, (obviously) there is always that other 15%. Good luck with whatever YOU decide.