Thread: Long-Term Treatment with High-Dose Thiamine in Parkinson Disease: An Open-Label Pilot
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Old 11-02-2015, 05:30 PM
rainbow676 rainbow676 is offline
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Join Date: Mar 2014
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10 yr Member
rainbow676 rainbow676 is offline
Junior Member
 
Join Date: Mar 2014
Posts: 72
10 yr Member
Default calling Sim00
Quote:
Originally Posted by lurkingforacure View Post
Would have been helpful if they mentioned the dose, and the form of thiamine given via the intramuscular injectionons. Hard to get a doc to try this if you don't know the basic protocol to follow.
Agree that the dosage information would be helpful, lurking. My mom is going to her MDS tomorrow and is going to ask about this.

Based on the last names of the study authors, I think this trail may have been in Italy. If I recall correctly, Sim00 was receiving intramuscular thiamine injections in Italy. Sim00, could you kindly send along an update when you have a chance. When you wrote on July 15, you seemed to be doing well. I hope your improvements have continued.

Would also be good to see a control trial on this at some point. I wonder if one is in the works.

Thanks, all!
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Looking for different options for my mom, born 1946 and dX with PD in 2010.
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"Thanks for this!" says:
sim00 (11-02-2015)