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Old 11-02-2015, 11:47 PM
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sim00 sim00 is offline
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Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
sim00 sim00 is offline
Member
sim00's Avatar
 
Join Date: Jun 2011
Location: Italy
Posts: 192
10 yr Member
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Quote:
Originally Posted by rainbow676 View Post
Agree that the dosage information would be helpful, lurking. My mom is going to her MDS tomorrow and is going to ask about this.

Based on the last names of the study authors, I think this trail may have been in Italy. If I recall correctly, Sim00 was receiving intramuscular thiamine injections in Italy. Sim00, could you kindly send along an update when you have a chance. When you wrote on July 15, you seemed to be doing well. I hope your improvements have continued.

Would also be good to see a control trial on this at some point. I wonder if one is in the works.

Thanks, all!


Hi all, I think that intramuscular injections of Thiamine are very helpfull, you can see a good result especially when you are starting this therapy. I feel good in general, but I don't have the countercheck if I don't use Thiamine.
However the dosage is 100 mg twice a week, intramuscular injections. In Italy I use Thiamine called "Benerva".
See also this link: http://www.ultimaedizione.eu/parkinson-eng/
with the last interview with Dr. Costantini, and videos of patients treated, first and after.
Regarding a clinical trial, in the link is mentioned Dr. Fancellu in Genova - Italy.
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Sim00

Born in 1969, diagnosed PD in 2007, first symptoms 2004. DBS in July 2016.
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