View Single Post
Old 11-03-2015, 11:07 AM
AlaskanLady AlaskanLady is offline
Junior Member
 
Join Date: Nov 2015
Location: Alaska
Posts: 8
8 yr Member
AlaskanLady AlaskanLady is offline
Junior Member
 
Join Date: Nov 2015
Location: Alaska
Posts: 8
8 yr Member
Default

Quote:
Originally Posted by Dhall748 View Post
I am just curious how you know when it spreads to an organ. Like the bladder, is it constantly burning like a uti when you urinate. Any thoughts or experiences?
I have full body RSD which does include organs in my case. In my experience it seems no matter if it has traveled to my heart, liver, bladder or ovaries I feel the same intense burning that for me included increasing pain medication. I was fortunate enough to be at a heart specialist clinic while having a flareup which the doctors were able to witness my heart growing at the same time my blood pressure dropped as well as my body temperature. Since then my ovaries & intestines are the only organs showing proof of my internal flareups, but at least they were documented.

If the flareup is in my bladder I flush it using cranberry juice, teas (specifically for bladder infections) for the first two-three days then after that time if it is the RSD and I put the slightest bit of pressure on my stomach the pain will increase tenfold. My doctor once told me how to tell if it's an infection but I am having trouble recalling exactly what that is & don't want to give the wrong information, but this might be something to see if your doctor can provide some insight.

I wish I had more help to give you & wish you the best of luck in getting the burning to stop.

Gentle hugs
AlaskanLady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
DejaVu (11-11-2015), Dhall748 (11-03-2015), PurpleFoot721 (11-03-2015)