Junior Member
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Join Date: Nov 2015
Location: Alaska
Posts: 8
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Junior Member
Join Date: Nov 2015
Location: Alaska
Posts: 8
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During a major flareup of CRPS II I was able to show the doctors under thermal imaging exactly what I was feeling, but they didn't believe me until they saw it with their own eyes.
My body was rejecting the device which was showing up highlighted on the screens and once they removed it the next imaging a few months later showed only slight difference from a non CRPS patient no more brightness from that specific area.
I too can no longer have any surgeries unless life threatening due to my body swelling too much for stitches. Had open wound for over four months & was extremely lucky no infection from it.
At one point in time the NIH website included what doctors should do pre-surgery as well as post-op to keep the CRPS from spreading, but I have not located it on their site again. I do have a copy I've given to my doctors I would be willing to give you as soon as I can locate it.
I wish you & your son all the best and hope he gets relief soon.
Gentle hugs
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