I've had the body jerking also. It has calmed down but every once in awhile it will flare.

As far as diagnoses. Let me tell you, I would go to every kind of Dr. going to get diagnosed.

I think it takes more then one Dr. to diagnose someone who has more then one or two things going on. If your insurance will pay then go to a Neurologist, Immunologist and any other Dr. that might have insight to what is going on with you.

I have seen a lot of them. My PCP has sent me out to them to help get me diagnosed and neither one of us feel like I know what is causing all of my problems. He just sent me to an Immunologist two weeks ago and I go back next Tuesday to find out the results of my blood work and sleep study and chest xray.

Don't give up and try and find the right kind of Dr. for what you think might be going on with you.

I know what you are going through and you are young and very wise and have enough common sense and knowledge to know that there is something wrong and you need answers.

Hang in there and don't give up. You will finally find the right Dr. that will be able to diagnose at least some of what is going on with you. A lot of us don't just have one or two things going on we have a lot more.

Have a good evening,
Ada