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Old 06-28-2007, 08:40 PM
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Lailavila -Hopkins is probably one of the...

BEST places you could be to get diagnosed! I'm posting a list that comes out annually and Hopkins has been 'in the top 3' for the last five years!
http://health.usnews.com/usnews/heal...pecihqneur.htm
OK that said, IF you look at Liza Jane's worksheets...it maps out all the different routes of testings that neuros do [or SHOULD DO] to check out all other options and zero in on what the real problems [diseases/issues...whatevers are]
One thing Hopkins is very good at is LOOKING AT THE WHOLE PERSON. From all you have said that is important, and they've boodles of resources at their fingertips...Your insurance is covered thru them...go for IT!
Just understand a couple of things: One- neuros love to go slow with the testing and evaluations...they are very cautious people as a group [usually]. But they can move on testing and other evaluations soo quickly it can make your head spin if they think they are 'on to something'. If they move quickly, count your blessings and move heaven and earth to GET there and be tested! Two- you may not get 'along' comfortably with this particular neuro, but be HONEST above all! Telling little lies or omitting some things could be crucial to any diagnosis if at all. Also, keep in mind, that once you are in that 'system' you may find a doc you like or feel more comfy with during all the testing and such. Should that be the case, ask that doc to 'take you on' if they feel it's OK...worth a shot? Nothing ventured, nothing gained.

Relatively speaking...the 'what's wrong with me?' issue for me neuro-wise took just over a year. I was not internet-wise at the time, just running on gut-feelings! When I was diagnosed with cancer...it was 6 months from date lump found to final implant surgery...Talk about whirlwind? My mind was in a turn-around fog half the time! The only reason I know my decisions were right was that I ALWAYS followed that instinct. You have that going for you in you! You just have to learn to direct it in ways that will best benefit you.
I definitely do not want to denigrate any of the hospitals and neuro resources near me, but, honestly I am a bit jealous that you are in a HOPKINS neighborhood! These days, tho, I'm not sure I'd survive the trip!
SO... for now, go forth and fight the fight, do the tests, and be more confused than ever...comes with the territory! - j
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