Originally Posted by Ellis Mae

Thank for your information. I've been doing considerable "lurking" to read the posts. They are most helpful. I'm still in the "testing" phase to rule out other issues but my neuro doc seems fairly certain. I'd been on primidone 2 tabs 50 mg at night for tremors. Since we've been investigating the increase in tremors all this other "stuff" pops up. I tried Azilect for 8 days with some relief - still driving at that point. I asked if we could get the tremors under control and stared 1/2 tab cardo/levo 25 100 2x's daily then after weeks increase to 3x's daily. Boy did I shake the next day with getting off Azilect. Maybe it helped more than I realized! At night take 2 primidone 50 mg each and my simvistation 20 mg. Up to one tab 25 100 c/l three times a day. I do take Percocet and yes some of us don't abuse it! When the pain gets really bad. It seems to help and makes me calmer. Everyone seems so supportive here. I'm in Ohio and have decided to ask my neuro doc to refer me to OSU Wexner Center for movement and disorders. The irony is I was just semi-retiring and found this out. Wasn't even in my wheelhouse 4 months ago!
I'm in fairly decent health overall. I have a history of Crohn's disease but thank God is controlled now - no meds either!! Your information is most helpful. I think my anxiety would decrease if the tremors can be controlled too. I know what you mean about shaking apart. I have a member of our congregation who was in a nursing home - couldn't eat - thought this was the end her new neuro doc put her on Stelevo and Topamax and she's been symptom free for 10 years - lots of other issues though but not from pd or meds apparently. Another gentleman just had DBS done. Not sure how long he's had it though. So I have two good examples close to speak with.
Thank you again for your info - I must have needed to vent!

Ellis