Shabby treatment situation...HOW you Present your issues/conditions, and where you go from there is well, gonna/GOT to be good?... We all have to think positive here! As good vibes are all we GOT!..

I see my neuro...he asks how are your doing? My response is always: as good as can be expected- not looking for miracles here, but would like one or two if available..Not that I'd like different mind you! As in worse...You get my drift.
Being cool, calm, articulate, have what brain you have left working and intact...hey. these are key features to keep the doc's working FOR YOU!. As for the Oh-my-goodness'es! Well, you ARE allowed those breakdowns AFTER the appointments...not during ever! Silly but true, they tend to respect US for the non-breakdown-ness... I do believe YOU are on the right road? One of those silly gut feelings... - You will get to where you need to be! I know it!

YOu have learned soo far...how to describe pain, the levels and how it disables you. You have learned how to do all that to DOCs who sometimes have no reference points as to your real discomfort... you are getting tested for all the zillions of issues that may or not be the the 'cause', but also tothe effects...which lead to proper treatments. TREATMENT of the pain and then all the other stuff is what all this is about! Keep strong and STUBBORN...you WILL Get there! Tho the next week won't be it, as there seems to be a holiday stuck in between...somehow.
You have made heaps of progress tho..just get those tests done! Not fun, not easy, but...you will achieve lots more doing it all!!!! Good thoughts and heart - plus a few hugs! - j