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Old 11-09-2015, 09:27 AM
kitkat33 kitkat33 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 8
8 yr Member
kitkat33 kitkat33 is offline
Junior Member
 
Join Date: Oct 2015
Posts: 8
8 yr Member
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I saw the specialist and she doesn't think I have hydrocephalus. I guess the shape of my ventricles is not what you would traditionally see with somene with hydrocephalus and she think my symptoms are not specific to the disease. However, she is not sure what would be causing them. Her guess is I have some sort of genetic mutation that is making me tired and more prone to fatigue, bladder infections, heart rate issues, etc. She mentioned if I wanted she could do a flow study but I would need to first do another MRI because it looks like my cerebral aqueduct is very thin or potentially even closed. I guess the flow study will not work if that is the case? It concerns me that mine might be closed but the specialist seemed to think that would just mean that by brain has developed another way to move the fluid...She mentioned also with many people who have hydrocephalus their aqueducts are wide, so that was another reason she was not leaning towards a hydrocephalus diagnosis.
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