So sorry for your suffering. I have had this over 15 years now and I remember from the beginning my neurologist at the Mayo Clinic telling me two things. It is still in my hands and feet - BUT, it is like if you stubbed your toe - pretty soon your foot hurts and then your leg. Nerves talk to each other. The other thing he said was there will be a time that your brain will adjust and things that are so hard for you right now will become the norm and there will be an adjustment to living in pain. I remember clearly thinking he was crazy - but truly that was my story. I do live in chronic pain and I do feel it everywhere. (getting my hair done is the worse) HOWEVER you need to find a good neurologist that will help you keep a quality of life - there are good meds that help. Lyrica changed my life and even allowed me to work part time again --- joined with a strong pain killer -- I have continued on with my life. I truly feel for you, but find yourself a doctor that can help. Good luck and keep coming back these people are the best in helping even if you just need to vent! HUGS