Hi Newyork,
Has your PM team offered you ketamine infusion treatments?
I am not referring to the "ketamine coma."
Some will, while some are against this.
Dr. Kirkpatrick helps young people with CRPS/RSD.
He is in Florida. You might get some ideas from his site.
http://www.rsdhealthcare.org/about-us.html
The link entitled, "RSD/CRPS in Children" will take you to a 43 minute video where we meet some of his young patients and they talk about their experiences.
Personally, I have learned every incision creates major problems for me. I will avoid any further surgery unless my life depends upon it.
You are making a big decision. I hope we can help support you in discovering the best options for you.
Hope to hear more from you.

DejaVu