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Old 11-09-2015, 10:08 PM
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ShaggyChic_1201 ShaggyChic_1201 is offline
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Join Date: Sep 2014
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ShaggyChic_1201 ShaggyChic_1201 is offline
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ShaggyChic_1201's Avatar
 
Join Date: Sep 2014
Location: Midwest, USA
Posts: 86
10 yr Member
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Quote:
Originally Posted by joeyphoenix21 View Post
Hi there,

Was wondering if anyone here has had a spinal cord stimulator implanted.

I have severe burning neuropathy in my legs and feet. I also suffer from thermal allodynia (temperature changes cause pain) and tactile allodynia (pain from clothing, bedsheets). The cause of my neuropathy is lyme disease. My pain levels average between 6-8. I am unable to tolerate any clothing on my legs at all.

Does anyone out there have similar symptoms and get relief from a stimulator??

I have tried many drugs for this condition including antidepressants, anticonvulsants, narcotic pain meds, topical medications, etc. While some drugs have offered relief, the side effects are unbearable. So now I am at a point where the stimulator seems like my only option.

So, if you have a spinal cord stimulator, I would love to hear of any success you have had with it. Sorry, but I would rather not get messages from people who did not get relief or any horror stories. I am looking for some encouragement as I feel very hopeless.

Thanks for reading
I have an SCS for the same symptoms and it works quite well. Do not go into expecting to be pain free, b/c you won't be, but at least I can wear clothes on my arm again. I don't find that the SCS covers the temperature allodynia and I miss that I cannot go out in the sunlight for more than a minute. Still that symptom bothers me the least because temp fluctuations don't occur but a few times a day and I wear clothes all day long.

I hope you are not still taking the medications that you think caused the problem
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"Thanks for this!" says:
joeyphoenix21 (11-09-2015)