So here are my questions:

Walking after having to use a chair?
What pain meds are reasonable to ask your GP to explore with you?
Sleeping with this friggin disease, is it possible?
What is a reasonable amount to expect pain levels to get to with treatment? 4? 5? Currently am at a steady 10+
How fast has your CRPS spread?
My right foot has taken a darker turn, and looks more blackish (not super super dark, more like I ran in some dirt) and blue tone, I am going to bring this up to my doctor, but so far no one has cared. Should I be worried about gangrene? Or is gangrene something that happens to certain cases?
How to you tell potential employers about your CRPS? Especially when you're in a chair?
Am I just crazy and this is a horrible nightmare?
Is rage something that is common? Just the other day I was SO annoyed by someone talking through my headset I threw it because her voice and perky glass half full attitude literally made me want to yell at her to be quiet, that one day life just becomes hell because you wake up with this horrible uncureable disease (even though logically its not her fault, and bravo for being glass half full!)?


Dear Lessa, I have cold CRPS 2 mostly now but let me give my opinions in order of your questions.

Walking....that is going to be a tough one. I would try those walkers w a seat....and walk a little sit a little. When my ankle broke it was hard after being confined until it healed. And I still use a cane.

None of those meds worked for me either....even the over the counter stuff. I am currently on low does nalterxone but for me, my hot crps isn't as hot but I still suffer with the cold.

Ahh the much needed sleep. It is possible but it doesn't last orchappen every night. I am not a nap person but without rest I was so stressed that whenever I felt I would sleep I would lay down...didn't always work. But oh that first full deep sleep took a weight off....I can't recommend them sleepy time stuff cuz it made me shakey when I awoke. Even with muscle relaxers, sure I slept but it was restless because I would wake more tired...ldn helps me sleep most nights.

How fast can this damn monster spread? Like wildfire....

Blue foot happens.... How's your circulation being in a chair?


You have to be honest....sure they see you are in a chair but they can't see your pain and how in the blink of an eye it escalates. I think it also depends on the kind of job you are applying for.

Sorry this is not a nightmare but your life...you are NOT crazy and YES rage is common. With lack of sleep a stupid question can push you over the edge. Mine is also in my jaw and having to repeatedly state something and have someone say see you can talk was like nails of every human on earth on a chalk board!

You will have better days...don't over do it....and those hell on earth days cut yourself some slack....vent here we will gladly listen.

It's a new adventure. It hurts like you know to do the things that you used to or come naturally to others...be kind to you poor body....put your mind at ease when you can. A monster resides within you....but you are still in there too.
Keep up the fight.....