Junior Member
Join Date: Nov 2015
Location: Comox Valley, British Columbia, Canada
Posts: 31
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Thank you so much for your responses!
@Littlepaw, I had imaging done when I sprained the ankle originally. An xray a few hours after the incident, and then a follow up at 6 weeks, and 12 weeks. I don't break bones usually, and my doctor noticed nothing out of the ordinary then. In June when my foot started to hurt I was convinced that I had broken something. Two xrays and one bone scan later determined that was not the case. Currently our finances could not handle private doctors/imaging, but I think there is a place in town that does MRI's privately if needed. I'll have to look into it (and then take out all my piercings, oy vey), but I do have those consults sent in. Maybe I'll just annoy the hospital until they push me through. I did have an aircast, and was using it during the beginning of the pain, because we were hoping immobilizing it would give it the time it needed to heal. Sadly now I can't wear it as I can't tolerate it.
Also I eat 2 tramadol every 4-6 hours, and am usually counting the hours to use it again, even though I haven't noticed any real respite. When the pain came back in June I tried taping it with KT tape, ice, tiger balm, and a few other muscle related things. All ended up with me demanding it be off NOW. Like super now! That was horrible.
@Enna, my circulation is fine in the chair, except my feet are still cold as ice. I will admit my feet have always been a bit cold, but this is cold for me. If I can tolerate it I wear nice warm wool socks, and they seem to help with circulation. If not I wrap myself in blankets I've desensitized myself on and they seem to be okay.
@Catra I can't manage even a normal gait, its this weird walk, shamble, limb thing. I have used crutches and a cane in the past, and still use the cane to get into the car (as I haven't figured out how to any other way from my chair). I also use the cane to slowly shuffle in the house...when I'm not being stubborn and saying that I can do it just you watch me! It usually ends in horrific pain though. Darn my stubbornness. I'm thankful it hasn't been determined to spread up my legs, though the lower ends of my calves hurt like nuts. I do continue to wiggle my legs throughout the day, and move them quite a lot. I also slowly rotate my ankles and flex them, and slowly move my toes and do some foot exercises in the air, to keep those joints moving. I stop when it becomes too painful. I do this throughout the day on and off depending on pain, as I know how important it is to keep joints moving. It is difficult as they're always stiff, but I'm determined not to let them freeze up and cause more grief that way.
@Swimtime due to my insomnia melatonin does nothing for me. I have been recorded to take 300mgs and still be awake. My doctor was just about contemplating a horse tranquilizer when finally we upped my dose of trazodone enough. At first I was on trazodone and zoplicone, but weaned myself off with instructions from my sleep doctor. Since I was not respondent to CBT (congition behaviour training), she gave up on me. Part of my sleep issues is minor sleep apnea but I have a machine for that. I'm literally just lieing awake because I hurt, or I have energy I haven't expended, because I can't walk anywhere! I used to be an active person, and some days I feel it more than not.
@All, I do take antidepressants, took them before for clinical depression. Before all this started to happen my mood was more happy and I was more balanced. I didn't have a glass half full view on the world, but I was content and happy with my life. Now my mood is horrible and I have yelled at my wife for NO reason. I apologized every time, but I feel horrible for doing so. She understands the amount of pain I'm in, so she tries not to be too hurt by it, but its not something I want to practice. She is the light in my life, and a woman I love dearly. I have been practicing deep breathing before I speak, as well as reminding myself its no one's fault, and that the blame lies no where. Lady Luck just wasn't on my side, and this is a test to make me stronger. Sometimes I can't control it. I will continue to deep breathe, and I'm going to therapy, so perhaps she has some techniques there that'll help me.
It doesn't help that I'm a woman too, and that one week a month makes me already agitated, especially from cramping as I have severe cramps. The IUD I had put in has helped immensely with that, and I rarely get the cramps, but man those times I do I just want to curl up under a rock and sob.
That being said she is my biggest cheer leader, and when I'm particularly low she is my shoulder to cry on, my rock to cling to, and my hope to feel. She reminds me of all the good in my life, from our two beloved cats (we don't want children, they are our 'children'), to our hopes and dreams. Usually I can get through it, but its the rage that blind sides me, as I know I have a temper, and have worked diligently to learn to manage it and do not usually have any rage outbursts anymore. As a child I did, but have used many coping mechanisms to over come it, from deep breathing, to excusing myself to allow myself time to just sit there and calm down. I used to go for walks when I was really pensive, but that has become difficult...And this dang wheel chair that I'm renting isn't that great for outside. Its fine on flat, but I live on a very hilly/mountainous island.
You all have wonderful ideas, I'm going to re-approach my doctor about imaging, perhaps he can be a little more pushy and get stuff done. I will also look into how much it costs. We do have third party insurance, which does cover things. Its just a matter of having the money up front so they'll pay us back. Also we're trying to save our medical equipment funds and payments for the bigger things I need, such as a walker or wheelchair, and PT.
I think I may ask my doctor for some patches that help with pain, or other medications. I hate asking for stronger opiates, because I worked at an addiction centre, and saw all too well the effect Oxy had on people. But I feel like I'm running out of options and honestly, opiates may just have to be the solution, until a pain doctor finds something else.
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Fighting CRPS Type 1 (Cold sadly) Since June 2015.
Eight years after original diagnosis, cold CRPS 1 patients have poorer clinical pain outcomes and show persistent signs of central sensitisation correlating with disease progression. The latter is not the case for warm CRPS 1 patients. *
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