Originally Posted by BioBased

Oh mama, I know what you are feeling.

My PM doctor supposedly trained Dr. Chopra, but will not offer me much of anything Dr. Chopra green dot listed. So far I have gotten neurontin. It doesn't cut it.

After waiting months to see this doctor he told me to "doctor shop" to find someone to give me the bisphosphonate infusions. Someone "might" give them to me.

I feel as if none of the people know squat about CRPS, because if they did they would know a CRPSer likely does not have the wherewithal or the energy of the unafflicted to be hunting down doctors. I have limited energy.

I believe that because there are no set guidelines for treating CRPS the doctors are afraid to be "experimental," which often translates into no treatment.

It infuriates me to read what others got or are getting here for treatment, when I have gotten literally nothing, despite seeing many doctors. One doctor told me he might give me lidocaine or topical ketamine. "Maybe in a couple weeks." I never went back. I needed help right then, not in a couple weeks and certainly not "maybe." Perhaps if he had helped me cut the pain then I could have made better progress.

Mama, I was warned never to google by multiple doctors. "Never." You have to wonder why researching your illness could be wrong.

What has helped me the most is the LDN I am using to self-treat. And before anyone gets upset about it, let me add this, I contacted one of the big CRPS doctors by email who did not admonish me or lecture me for going down this path when he responded. Although, he did offer to see me in his office. If I had the wherewithal I would go.

PT is another positive. Epsom salts baths. DMSO. NOW MSM and arnica cream.