Hi NYM,

I agree with the advice to take enough time to fully research and to obtain some highly educated, hopefully CRPS/RSD expert, opinions.

I also agree, from experiences (mine and others'), some of the people in medicine are not interested in the ultimate welfare of patients/clients. Sad, but true.

When procedures and/or devices are involved, sometimes, the biggest incentives are money and increasing procedure counts. Sad. Beware.

I have not heard of one positive response to SCS for CRPS/RSD. I cannot say there has not been a positive response. I hope to find one...and more. Yet, I have yet to find one.

Pradeep Chopra, M.D., is an expert. He shares a lot of his knowledge and opinions in his videos. The most recent I have found (2014) is on "Diagnosis and Management." https://youtu.be/s3LKhOZ8mAM

He speaks/teaches/shares in several other youtube videos. I hope you will have a chance to listen in.

He practices in Rhode Island.

His site: http://www.painri.com/
Lots of info on his site, too.

He and his colleague are also taking referrals.

"Our group is eager to work in conjunction with referral physicians and primary care doctors. We highly encourage direct contact to any of our Pain physicians and physician assistants to discuss any issue they may have."

I wonder if your primary care doctor might place a call to ask about SCS and about other options for a person your age? I wonder if Dr. Chopra or Dr. Schneiderman might see you for a consult?

There may be a CRPS/RSD expert closer to you? Maybe you are seeing one now?

Please keep talking with us. I hope we can help you to know all you will need to know in order to make a fully informed, balanced decision.

We truly only want the best for you.



DejaVu

P.S. If an SCS is place in a younger person, does it need replacement surgery and how soon or how often?