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Old 11-11-2015, 03:19 AM
Lessa Lessa is offline
Junior Member
 
Join Date: Nov 2015
Location: Comox Valley, British Columbia, Canada
Posts: 31
8 yr Member
Lessa Lessa is offline
Junior Member
 
Join Date: Nov 2015
Location: Comox Valley, British Columbia, Canada
Posts: 31
8 yr Member
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@Bio I have written down all these and the next time I'm by a healthfood store/supplement store I'll take a quick look and see what they have in stock! I take vitamin d3, as it is awefully dreary here during the winter with all the rain and no sunshine. As well as cranberry pills (UTI related). I also usually take a multivitamin. Sometimes I forget to though gah! As for needles, I always inquire why I need them, what's it good for. Can we just take a urine sample instead? I don't enjoy being poked (though my numerous tattoos and piercings say otherwise..hmm). I have noticed if I say...whack my knuckle on something it smarts for a longer time than it should, and it hurts way more than it should. I'm very clumsy and accident prone naturally, so now I fear I may just have to live in a bubble to stop my clumsy nature!

@Enna cold feet run in the family for some odd reason. I have been poked and prodded and there should be no reason why they get cold. They just do. Silly things, its usually not terrible just minorly cold. Only becoming very cold if its freezing outside and I've refused to wear socks. I also hate things on my feet, and the theory is I'm just not wearing socks, or slippers, or something, enough to help maintain the temperature in my feet. Now though, I will be wearing socks and I can feel the cold radiating from them. It takes forever for my natural body heat to warm up my toes =(

@All Thank you so much! Its a huge huge stress of my plate to be worried about devices to aid for mobility. They also will help with finding a new place and any renos we have to do. Needless to say I'm ever greatful for them. I appreciate all the out pour of love and support, its been really needed, and awesome at this time.

@Little When my ankle started acting up in June, I was convinced I had broken something, since it just hurt like no other, I figured I had done something to snap a tiny bone. So I insisted on imaging to get to the bottom of this mystery.

Also we are going to talk to my PT friend about if the pool where she works at can be warmed up. Cold makes me far worse, as I already have cold CRPS, and so a regular pool is out of the question. Hopefully the pool at the PT office can be heated to a more bareable temp for me!

@Deja thank you! We appreciate the love, and send lots back to you and yours. I'm so relieved to hear that we won't have to scrimp too much to get by.

@Purple, my legs are generally elevated a good portion of the day, but I do let them just hang around and be normal. I find its easier to stretch them when they're just being in a normal sitting position. I also ensure not to stack my feet onto of each other. Always having them each with their own area, so no one foot is hurting the other, as it seems with the lack of sensation my feet like to play the game of 'lets be dead weight and hurt the other foot'. Its a wretched game.
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Fighting CRPS Type 1 (Cold sadly) Since June 2015.

Eight years after original diagnosis, cold CRPS 1 patients have poorer clinical pain outcomes and show persistent signs of central sensitisation correlating with disease progression. The latter is not the case for warm CRPS 1 patients. *

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"Thanks for this!" says:
DejaVu (11-13-2015), PurpleFoot721 (11-11-2015)