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Old 11-11-2015, 06:01 PM
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
AnnieB3 AnnieB3 is offline
Grand Magnate
 
Join Date: Feb 2009
Posts: 3,306
15 yr Member
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Candi, Not all drugs that make MG patients worse are necessarily on that list. I've done far more research than that one article, but I'm not doing well right now, so that's the best I could do. The science, however, is valid.

Whenever you consider a drug, search the drug + acetylcholine to know what effect it might have on you.

And it's not only one drug, but anything else you are taking or "intaking," such as certain foods (nightshade foods, caffeine, etc.).

Too much magnesium can make MG worse, too.

The enzymes could be high due to TPMT. You need that test right away.

And I hope you will see a hematologist. Sometimes regular docs miss hemochromatosis and don't order all of the necessary tests for that.

LEMS gets worse, better, and then much worse. It IS different than MG. Mestinon doesn't always help. Some patients use 3,4-DAP.

http://www.ncbi.nlm.nih.gov/pubmed/20979551

Did they run an Acetylcholine Modulating Antibody test? Anti-striated muscle antibody test?

Yes, you can have other cancers with LEMS as well. And that's exactly why they need to know if it's MG or LEMS.

What is your exact B12 level? Your body can be deficient in it even at so-called normal levels.

Doctors and pharmacists don't know everything. No one does.

Annie
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"Thanks for this!" says:
juliejayne (11-12-2015)