Hi Cara,
It makes me so sad every time I read that someone so young has had to deal with this. There are a few members here that are unfortunate to have to have their child end up with crps. Your son does have youth on his side, (9, that is too young to have to deal with this

), so he has a great chance still at putting this into remission if treated properly. It is good that you are getting him to multiple doctors in different fields that may have a some knowledge of helping. Pain management and neurologists are quite often the ones who know the most about crps but don't be surprised if they are not very knowledgeable about it. This is a great group here and as I said before, some with children that I hope will give some more information as to how their children were treated and what has worked for them. Healing hugs to both you and your son.