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Originally Posted by JoannaP79
During an acute phase of Amyotrophy, my legs,buttocks, especially quadraceps got small and I was walking on a walker. Now they are as a group stronger enough to allow free walking. I have also gained weight back that was lost but feel that the muscles are bigger than they were at my weakest. I feel that they(muscles)are smaller than originally but the strength is still not back to 100% either. I feel that my strenght may never come back to 100%. I suppose we fight to get what we can and make do with what we end up with. Good Luck, Ken in Texas.
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Thanks Ken, can I ask whether you have sfn in the areas where you feel the amyotrophy hit most.
You have always advocated using an excercise bike daily - do you believe it was targeted excercise that helped regain some strength / mass in the affected areas?[/QUOTE]
How can I say that exercise is important and yet useless in the same breath?I tried many forms of exercise but got no results. I feel that you have to keep calling on those muscles to hasten nerve regrowth. My turnaround was so slow it could have ONLY been regrowth. I have not been DX with sfn, just periferal neuropathy. I don't think everyone has just one thing going on, you might have motor involvement at the same time as dealing with sfn. I think that many Drs quit looking as soon as something is found that the patient and Dr both can hang their hat on and start some form of treatment plan.IMO you should use the atrophied muscles daily. Just to tolerance, this tells them they are still needed and will hasten all processes. As far as being self-conscious about your slenderness I thought a person could never be too rich or too skinny, haha. Maybe that is a California thing. Good Luck, Ken in Texas.