I'm so sorry you're facing this. My 14 year old son was diagnosed a year ago. He was in extreme pain daily, nightly. It takes a toll on the whole family. Research all you can about his diagnosis. The more you know, the better you can advocate for him and identify the best doctors. http://www.ncbi.nlm.nih.gov/pubmed/ Lots of reliable medical research here.

He made huge improvements over the months. Just keep him moving as he can tolerate it. Play therapy is really important given the age. If you find a physical therapist who works exclusively with children, fantastic. Children's hospitals are a good source of pediatric therapists. Also, check with your school. He may very well qualify for school-provided pediatric physical therapy. We have one from the school that comes to the house, and she's fantastic.

Pool therapy is your best place to start if he has too much pain to do land therapy. If you can find a pt place that has a pool, great. If not, find a local public pool with warmer water (YMCA, gym, etc.)

Things are so much better than they were! A child in pain is a wound to a mom's heart. Hang in there. You're his best advocate, cheerleader, and inspiration to keep going. Keep feeding him hope and encouragement, even when you're filled with fear or dread. Nobody fights for their child like a mama bear. Hugs to you!