Hello, I was so taken by your post I wanted to say hello. I don't know much about medical things so I am not much help in that respect, but I do feel akin to your plight in several ways. I am also 68 years old, have collagenous colitis and have recently been diagnosed with MG. I am seronegative, none of the blood tests gave any indication of MG, the visit to the neurologist didn't show him anything that jumped out to him, he did an EMG and it was ok. However he persisted to look at my situation and sent me for a single fiber emg done by a highly skilled SFEMG neurologist. It revealed that I had MG. it finally validated the symptoms -- which was good. It also scared me a lot because I was now facing another challenging disease. I am all over the place with breathing, swallowing, eye, and general weakness issues. Also the colitis is not being very manageble at this point either. I am not yet to a point of either the MG or CC being in a stable mode. Lastly, One thing that bugs me is that my arms bruise in deep red splotches or the skin tears and bleeds at the mildest touch. Not the end of the world I know but just looking at my arms makes me feel 100 years old. So, my heart aches for you about your hair, that's just a really low blow. I so get that. Intellectually we know it can be managed, but emotionally ... Sigh.
So brave lady, keep up the fight, see if you can get to a major clinic with a MG specialist. I wish hugs and strength.
Lily7