Hi Caraleigh, yesterday Biobased posted a link to an article that referenced the "spoon theory." I have 4 children, one of which has had a series of serious health problems his entire life. Nothing can tug at your heart strings more than your own child suffering. As you have already been doing, you have to be your child's biggest advocate. You will learn things that many Doctors will be unaware about. It sounds like you are doing a wonderful job juggling many different areas of his care. Getting back to the spoon theory. Google it if you've not heard about it yet. My youngest is eight and I believe she could grasp the concept if given actual plastic spoons to turn into you throughout the day. This might be a good way for both you and your son to recognize what's depleting the most spoons from his day, and adjust how he "spends" them accordingly. Just a thought. Prayers and hugs going out to you Mama. Your son is blessed to have you.