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Member
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Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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Member
Join Date: May 2007
Location: Spokane Valley, Wa
Posts: 473
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Artist,
I have crps type II cold. I ADORE the sun! If it's not very warm out, then I am stuck having to wear wool socks and a sweat suit. Being purple hurts.
It took several years before I lost all my stamina. For the first few, I kept right on truckin' on, hoping if I denied the crps power over me, that I might just win. Yes, I was fooling myself. Would I go back and change a thing? Certainly not! I kept the atrophy to a minimum for a lot longer than would otherwise have been possible.
I had seven... count em seven... specialists dx me with rsd/crps. I was one of the first to ever use Guanethidine, during the gov't trials. So, if you think you know all there is to know about this disease, and can dx people, think again.
Unrouley1, please don't leave us. After our time in chat this morning, you know exactly how I feel about all this junk. I know I was about to do the same thing, but I have changed my mind.
I doubt many of you saw the extra-long post I wrote earlier. I deleted it at the request of Chemar. She is right, of course, that's why she's our fav mod  But I wrote what I did out of defense of a friend who I felt had been unfairly treated by another. I'd do the same for all of you, too.
The rest of the world has no idea what we go through on a daily basis. We truly need this site, or at least I do! To think that one thread could endanger all we have here... well, the thought makes me sad.
__________________
There are only two types of people in this world... those who bring you peace and those who don't.
Last edited by theoneRogue420; 06-29-2007 at 10:57 AM.
Reason: trusting that one more post will be edited.
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