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Patrick Winter · 11-14-2015, 06:21 PM

Quote:

Originally Posted by caroline2

My friend and I talked about the "old times" and she said one of her friends told her his father used to rub his feet a lot as he said they were painful.

Maybe there was always pain, could be my father had pain too but I never heard about it. I think MAYBE back then, just my guessing, a lot of diabetes went untreated or people were not aware of it. I know my family ate LOTS of sugar and carbs all my early life.

I've also thought that with so many pharma drugs being given to people, these drugs could be causing so many more problems. My parents lived into 90's with all the sugar/carbs in their bodies and anacin/bufferin/excedrin in their medicine cabinets. Considering their lifestyles, they were pretty healthy, no big bad stuff. Arthritis was very evident in my family, women's side anyway. Just thinking about it all.

I had actually heard of it. I had seen something where radio Host Glenn Beck mentioned having it and how it was keeping him from doing his radio show. Although now he claims it was actually Addison's disease? Before that i had only heard of neuralgia and fibromyalgia. What is annoying is having to explain what neuropathy is to everyone who asks what i have. Almost no one knows what it is. Small Fiber neuropathy years ago was simply labelled under the broad fibromyalgia banner. They now have a name for it because of the small punch biopsy. At least that is what 2 different neurologists told me.

I just wish more doctors would be willing to point the finger at medicines for people who have idiopathic SFN. They always act like its impossible for it to be the case. Meanwhile, the studies are out there, Statins, Chemo, Acid Reducers, the list goes on and on... It's never the medicine, its always something else. Well, if it is why can't you find what that is???

Then at the same time it would be nice if they encouraged more people to take supplements. There are many that help with this, Benfotiamine, B12, R-Lipoic Acid, Evening Primrose Oil, Acetyl l-Carnitine and more. They aren't gonna drug you into a stupor like the big 3 (lyrica, Neurontin, Cymbalta) will but they will give a reduction in pain and improvement in health overall for many (not all). Most of my Neurologists tell me, you can go ahead and take it but I don't think it's very effective.