I had heard of diabetic pain before and there are ads on TV about it, but I had never heard of having those type of symptoms for any other reason. I did not have a clue what was going on when my symptoms hit. Someone told me it was Restless Leg. I joined a RLS forum and no one there suggested my symptoms could be Neuropathy.

I am finding there are many uninformed people that are victims of this disease. When I share my situation many people know someone who suffers from this if not themselves. When I recently told my ob/gyn doctor she started questioning me in detail and then admitted she was having some similar troubling sensations. After talking she decided to go to John Hopkins or Mayo to figure it all out. Last week I went to an attorney to draw up a living will, etc and I talked to him about what prompted me to finally do this. He admitted he has a drop foot from loss of sensation. For whatever reason it seems to me people don't talk about this. Bottom line is I think more people need to share their experience and not just on these Forums.