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Old 11-15-2015, 09:36 AM
juliejayne juliejayne is offline
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Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
juliejayne juliejayne is offline
Member
 
Join Date: Apr 2014
Location: Dordrecht, Netherlands
Posts: 225
10 yr Member
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Quote:
Originally Posted by AnnieB3 View Post
But the only diseases that cause FATIGABLE weakness are MG, LEMS, or a CMS.

Have you been to a neuro-ophthalmologist? They can do specific tests to check for fatigable muscle weakness.

Has any neuro seen fatigable weakness on a clinical exam?

Have you been to a pulmonologist to see if you have fatigable breathing issues?

Annie
Oh how I wish I could take this into my next neuro appointment... Been to a neuro-ophthalmologist... blamed dv on blinking, but I still have the DV, though no more blinking. Didn't seem able to check for fatigable muscle weakness.

Neuros have seen fatigable weakness on a clinical exam, but the bloods were negative.

Couldn't complete the tests at the pulmonologist due to fatigable breathing issues.

No droopy eyes, so I clearly don't have MG!!!!!!

Dutch specialists suck.
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