Hi. I have not posted in a while. I am double seronegative, sfemg positive MGer. I respond well to Mestinon and IVIG. All my doctors have always said I have something else going on as well. They evaluated for Lupus, RA, dermatomyosotis. All negative. A funny antibody came up on one of the panels - hY5 RNA of Ro and I was diagnosed with inflammatory arthopathy not RA. My symptoms continue to progress but I am stable. The doctors are doing a muscle biopsy next week and feels certain I have mitochondrial myopathy. Any one else here evaluated or diagnosed with mitochondrial disease?
thanks
kathiw