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Member
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Join Date: Sep 2013
Location: Georgia
Posts: 905
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Member
Join Date: Sep 2013
Location: Georgia
Posts: 905
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Hello ElaineD
That is absolutely wonderful news ! So happy for you !
I truly wish my story with SFN was as successful as yours.
Skin punch biopsy in Sept 2013 revealed severe SFN. No A and C Fibers left in my feet.
I could only go up to 1800 mgs on gabapentin before 'hearing' muffled music and voices.
So I'm on 1800 mgs gabapentin, BuTrans patch 20 mcg/hr and 3 oxycodone 10-325 a day. And I still have severe pain.
Pain doctor says my best bet is an SCS but I will still have pain. I'm not ready to take that route yet.
I was approved for SSDI starting in Nov 2013. I have to go to bed several times a day as my feet and hands cannot take one more second of me being up. I cannot grocery shop because even the vibration of the electric carts sets off the nerves in my feet. I don't drive unless absolutely necessary. When I ride in a car I have to put my feet on my Spiderman pillow that I keep in the car just for that reason. I rarely cook....my sweet daughter cooks for me and my mom everyday. I also cannot do very much cleaning as being on my feet and using my hands will cause an awful flare.
This disease has been debilitating for me and many others.
It's nice to read a story like yours.
Thank you
Debi from Georgia
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