Originally Posted by ElaineD

I think the feet are the hardest Debi because they take so much pressure, and it sounds like the pain you have when you aren't using your feet is like the horrible pain I had in my hands, like hot needles in my finger tips.

I have profound peripheral neuropathy in my feet and legs. Two of the main nerves are dead and one is severely damaged. They are so 'gone' that I actually didn't have pain from them.

I do get cramping, and my feet are ice cold, and look like I have Raynaud's.

The biggest disability is that I can barely walk and my feet and legs are atrophying.

I assume you don't have PN, just SFN? The seem to go together for some of us, tho' the PN came before the SFN.

As soon as I write about the SFN I can feel the weirdness in my face.

But I'm so sorry that you are suffering so. One thing I've learned is that we are all so different from normal people AND from each other, even with the same conditions and medications.

We must use great care and trial and error to find out what works for us.

It is so wonderful to have this forum for sharing.

Hugs, ElaineD