I had to spend some time in Hospital for a course of plasmapharesis after nearly going into crisis, myself. That sort of 'resets' you to let the medications get to working.

One of the things you mention is that you have trouble breathing in certain positions. In talking with other people in the local MGFA group, it seems that almost all of us have CPAP machines. I know that before I was diagnosed, I had a couple times where I was choking pretty badly, and was able to use mine as a sort of emergency ventilator, so I could breathe. It was able to get air past the collapsed muscles in my neck and let me breathe. You might want to ask one of your Dr.s about this.