Since I've been home, I have not had any breathing issues except the typical shortness of breath when running around a bit too much. At night, I am able to lay on my stomach and back, although I don't know if that will be a long term thing. Today was the best day I've had in weeks and weeks. Although my vision is still bad, with zero improvement, I am breathing good and today was the first day I didn't have any speaking issues. Even my friend said it's the best I have sounded since I got the MG. I am interested in the CPAP or something similar though, I snore and I was told that my oxygen levels weren't as good when I was sleeping while in the hospital. I wake up at times, so it's possible it is due to some breathing issues.
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Originally Posted by Nac Mac Feegle
I had to spend some time in Hospital for a course of plasmapharesis after nearly going into crisis, myself. That sort of 'resets' you to let the medications get to working.
One of the things you mention is that you have trouble breathing in certain positions. In talking with other people in the local MGFA group, it seems that almost all of us have CPAP machines. I know that before I was diagnosed, I had a couple times where I was choking pretty badly, and was able to use mine as a sort of emergency ventilator, so I could breathe. It was able to get air past the collapsed muscles in my neck and let me breathe. You might want to ask one of your Dr.s about this.
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