I have been thinking about this very same thing -- and In fact it is the reason I logged on to the site tonight, to see how people have learned to adjust. I received my confirming diagnosis about the same time as you did JerzyBoy. Fortunately for me I have not been to the hospital, so I don't know what you have been through.

But on this subject, I let some people know about my MG -- people that I had worked with previously and had displayed symptoms in front of them, before I knew what was going on. I reached out to them to say hello, let them know that the mystery was solved, and that I was hoping to be better soon. The overwhelming response was -- silence. No one reached out to me or even communicated in any way.

And to tell the truth I was pretty sad about that.

My husband has been pretty great, but I know I talk about it too much. There are some many things that are different now and I am trying to get my head around it all. I talk with him about it, but I know there is a limit to how much any one person can hear. I feel bad about doing that to him.

One of my recent daily goals is to see how much time I can enjoy in the day without circling the wagons in my brain back around MG.

I know that as time goes by that I will get more used to this, but so far, I am struggling.

I too an interested in hearing from others on this...