Quote:
Originally Posted by Porkette
Hi willowgirl,
Welcome to the forum. I've had epilepsy for 43 yrs. and it sounds like you
are having a lot of electrical activity going on in your brain. If I may ask do you ever see colors in your eyes or notice an odd smell like deviled eggs, natural gas, or a burnt odour? If you do have any of these problems you may be having a simple partial seizure also called an "aura" seizure.
Over the yrs. I have found that the best thing to do is to see an Epileptologist which is a Dr. that specializes in epilepsy, these Drs. know how to treat epilepsy and can find the cause of it much better than any neurologist I've ever seen. I also found that eating to many carbs and starch foods triggered seizures for me.
If you haven't started keeping track of these problems get a calendar and write down what time it happens along with a description of the possible seizure then when you see the Dr. this may help the Dr. see a pattern as to what time of day/night this is happening and they can treat you better. Try taking vitamin B12 1000 mcg. once a day it worked great keep my nerves calm and it reduced my seizures a lot. I wish you the best of luck and May God Bless You!
Sue
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Thank you for writing me back - during the times at night i've had things happen like flashing lights similar to fireworks going off in my eyes which is rather scary and at night when i close my eyes i see light flickering once in a while - not color problems or smells.... when i was young I had some odd things going on (I am 32 now) like everything around me would start moving really quickly and sounds and noises would sound like things were in fast motion and then when i was leaving a summer camp once in my teenage years (after a sleepless night) I had this bizarre thing happen to me where I was at a rest stop and suddenly everything was like tunnel vision and too bright for me and i wandered around barely knowing what i was doing and ended up at a fruit stand ( I know sounds weird lol ) which i would have never gone to if i was "with it".... This lasted for about 10 minutes til my dad found me and asked what I was doing - it was a very odd experience I have not had since but I still think back on these things and wonder if I always had a tendency for these things... thanks for the supplement info - I am just very scared these things are getting worse and happening more often and to a more powerful extent. Its all throughout my days from the time I wake up til i go to sleep... I just dont know what to do....?