Hi Jerzyboy,
I don't have MG but agree with the folks who said this also applies to other illnesses. I was dx'ed with cancer this year and also found some family members just went silent. I do have a best friend who is always there for me and she thinks, of those who have turned away, it is not being mean, it is being ignorant...they don't know what to say or do, so they do nothing.

It also sounds like you may be young and I think younger people(25 and under) may not have the compassion or patience for dealing with illness. By that I mean, as we get older, like me, we deal with more illness in ourselves and our friends and (hopefully) get more compassionate with age and experience.

I am sorry you have experienced the insensitivity of others and are dealing with what sounds like a difficult health issue.

On that note, with those of you with MG be willing to share how MG affects you in your day to day life? Jerzyboy, I don't mean to steal your thread, I was just hoping some education to others who don't have MG would help. I read the Wiki pages and a few other sites but, MG can affect so many things. What has it altered for you all? hobbies, jobs, does it affect ability to exercise, to walk, to talk, to eat, to care for oneself etc? Are their involuntary movements? embarrassing movements? What kind of crisis do you have that would require a hospital visit?

Thanks so much for educating me, and others....I don't know anyone with MG and would like to be sensitive to all of you and understand.

Thank you,
Diandra