Quote:
Originally Posted by teachermom
Hello everyone. I am new to the forum, but not to SFN. I started having the symptoms in spring 14. 4 doctors and one year later, I was diagnosed through skin punch biopsy with non-length dependent, idiopathic sfn.
I am a runner. As a matter of fact, the symptoms began while I was training for a half marathon. It has taken months, but I am finally back to my normal miles.
2 weeks ago, I called my neuro and asked if we could try a low-dose med to help me sleep through the burning pain at night. He prescribed 10 mg of amitriptyline at bedtime. I noticed a difference immediately. I couldn't believe how much better I was feeling. However, after about a week, I became very tired and dizzy. So, I quit taking it about 4 days ago. My energy is returning to normal, but the pain is incredible. It feels like my legs are full of toxins. I haven't been able to run for a few days because of the weather and I realize this is part of the problem.
Is there anyone who has been on amit. for an extended time? If so, did the dizzy tired symptoms get better?
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Hi Teachermom,
Sorry I was only on the amitirpyline for a few days because it did nothing other than make me extremely tired so I won't be of much help. That said, I am curious how you can run at all with SFN because in my experience it's extremely painful. You are very fortunate. Just walking a short distance is very difficult for me. My SFN came on very suddenly after having stents to treat a heart attack. It has spread to most of my body in a short 5 months starting in the hands. The pain is extreme.
I am sure someone will jump on here with some answers for you. BTW, There are several other drugs you can try that may not make you so tired. Also, In many instances that effect often goes away given time. I hope you get back to running asap.
All the best,
Cliffman