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Old 06-29-2007, 10:00 PM
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MelodyL MelodyL is offline
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Join Date: Aug 2006
Posts: 8,292
15 yr Member
MelodyL MelodyL is offline
Wise Elder
MelodyL's Avatar
 
Join Date: Aug 2006
Posts: 8,292
15 yr Member
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Roxie.

The reason you are having this at an infusion center is that initially, they will monitor you to see how you tolerate the infusion.

Alan went in the hospital for 5 days for his first 5 infusions. He tolerated them very well. He then began home infusions (you might also, don't know if your insurance will want you to always go to the infusion center).

When you do home infusions, you get a package in the mail with all the meds (you put the meds in the fridge). This will arrive a day or two ahead of the infusion. You will get pre-meds. Benedryl and Tylenol. Follow instructions.

And make sure they infuse at the rate prescribed. If it says 4 hours. THEN YOU GET 4 HOURS. not 3. Don't let anyone rush you, you might get a headache (that's why the tylenol).

Alan got a fever after one of his infusions. But for all the others, all he got was a slight headache. Everyone is different.

Some people get infused twice a month, some get it once a week. Depends on what your doctor prescribes.

Just recently Alan got reduced from two times a month (they called it a double load), to once a month. He also just got the pump.

So ask all your questions and don't worry. Alan's balance actually got better. So for him, this IVIG thing is a good thing.

Wishing you well.

Love, Melody
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