hi katurah. i'm so sorry you are suffering so much with rsd. rsd can spread to any part of the body and also internally affecting our organs. unfortunately there are still drs out there that don't educate themselves enough on rsd and don't know that it can spread. if i were you i would try to find a dr who knows what rsd is and how to treat it and see them. a good pm dr can hopefully help manage your pain. there are good drs out there and i'm sure you will find some good advice from people on this forum as well as searching the internet. i don't live in ny so i cannot recommend anyone there. i hope you find a good pm dr soon who can help you manage your pain and stop the spread of your rsd. soft hugs coming your way.