Hi katurah1975, Welcome to this forum, but I am sorry that you have had to deal with this for the past 12 years. As you have read, yes RSD can spread at any time. It sounds to me that your current pain management specialist is not entirely informed about CRPS/RSD and I am glad to hear that you are taking the steps to find yourself a new pain management specialist. I do not live in NY so I can not recommend a doctor to you. If you do not receive a response from anyone that does know a good specialist, I do have a list of doctors in all 50 states that have been known to provide care to patients dealing with CRPS/RSD that I would be willing to share with you.

Wishing you the best in your search for the relief we all deserve. Sending warm healing hugs out to you,