Quote:
Originally Posted by Mark in Idaho
Have you tried gabapentin ? It helps me with minor but persistent movement issues. I can have periods like restless legs all over my body at times as I try to relax to sleep. Gabapentin resolves this. I take 600 mgs.
Are you doing any nutritional therapy ? The Vitamins sticky at the top has the regimen I have followed for decades. It helps but may take weeks to see a difference.
Just about any MRI lab can do a DTI. It is included in most MRI software packages. The problem is finding a doctor who knows what to do with the results. Maybe a call to an MRI lab to see who requests them will direct you to the appropriate doctor.
How did you suffer your concussions ? If you had three over the past year, how many do you think you have had over your lifetime ?
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I have not tried gabapentin, but I have tried trileptal and tegretol which didn't help and then they put me on lamictal and it seemed to do the job. Because I don't have minor movement problems, I often have bouts of severe dystonic-llike movements on the left side of my body, and my limbs randomly fly out.
I do have a pretty intense vitamin regiment, which I find benefits my mental functions more than physical.
Thanks for the suggestion to call an MRI lab, I had no idea how I was going to find a neuroradiologist who can read DTIs. Do you think I should reach out to large labs like hospitals where there are likely to be more neuroradiologists?
My concussions are the result of a wide range of accidents:
Field hockey sticks and balls to the face, getting kneed in the head flipping someone over my back, face-planing while dune jumping (I hit my head so hard my contacts popped out), surf board to the head while surfing, smashing the back of my head on the metal door while getting my suitcase from under a Peter Pan bus, my coworker dropped a relatively heavy box on my head, getting smacked in the head by a backpack causing a whiplash movement, falling face first into the corner of a metal doorframe, and there were probably a few more along the way. The first one was in 2010 and they have been pretty evenly distributed over the last 5 years.
I haven't been allowed to play sports in over 2 years, at one point I had to wear a helmet all the time, but it has reached the point where I literally see and think everything is a danger and potential threat. It's scary and I am in fear nearly every day.
-BeanJean