This summer I found that every other day I had a little more energy and the next day I had horrible headaches and no energy. After a while I figured out that I did too much while I had energy and used it all up. I sometimes find it hard to remember that every day is affected by the one before.

My stepmother told me that when she was a little girl her father always made her stay home from school one day extra after getting well. He said that after being sick you need a break resting and doing things you liked, to recharge your batteries.

Try to get help from your surroundings to find the things that triggers your exhaustion. It isn't easy to think straight while exhausted! At least I feel like I can't access my whole brain when I have headaches. Even before my injury I could use hours before realizing that I had a migrain...

Some of the things others made me aware of was that I got exhausted by busrides, that I could only handle a maximum of two hours of social interaction before it affected the next day. I also learned to never go to doctors alone, always ask for the fluorescent light to be turned off and if possible, wait in the corridor instead of the waiting room (my doctor's waiting room have fluorescent light, a radio and a big blue information screen that all the chairs face. The corridor is quiet and has natural light).

I'm finally getting better after two years. I try very hard to not do too much, since I can now see where I went wrong the last time I got better. I went to the cinema, I went kayaking in the sun and I started studying again. Then I relapsed for more than a year. So please be careful!