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Old 12-11-2015, 09:05 AM
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eva5667faliure eva5667faliure is offline
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Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
eva5667faliure eva5667faliure is offline
Grand Magnate
eva5667faliure's Avatar
 
Join Date: Aug 2011
Location: new jersey
Posts: 3,523
10 yr Member
Default This made my soul cry out I am so sorry

Quote:
Originally Posted by R.AddisonCRPS2 View Post
Hello Everyone!

My name is Raechel and I live in Washington state. I was diagnosed with CRPS 2 this week and needless to say my life is in shambles. My children are being denied the ability to live with me because I am on Opiates for my pain. Yes you read that correctly... my children are not allowed to live with me because I am on pain medication. (so says the state of washington)
On and off for the past two weeks I have had these what I can describe as "flare ups"?
I guess I should start off with I started having symptoms last July, 2014 after a 13 mile hike in the mountains with my now husband. My pack on my back only weighed less than 25 lbs i think it was 24lbs to be exact. I DID NOT wear my hip strap and this is where i am told I made my mistake. I came back from that hike and I have never been the same. I was finally diagnosed with a brachial plexus injury to my right shoulder, with a 25% loss of nerve function diagnosed using the painful EMG test. My injury has now turned into CRPS type 2.
The pain goes up and down in severity, is a 10+++ at its worst!!
But the last two weeks, my skin on my hands is peeling? and getting worse everyday.... My pain meds are not touching the pain at this moment, and every second of typing is making it worse, the numbness and pain. My symptoms have now spread to my left shoulder and my right hand turns colors... mostly blue.
Am I the only one that has the skin flaking off and such? I feel as though some of these symptoms do not even apply to a nerve injury! lol. It makes no sense to me!
I AM SO IN NEED OF SUPPORT AND REASSURANCE! THAT MY LIFE WILL IMPROVE! I AM LOSING HOPE AS THE DAYS GO ON... that i will lose my children and my will to live... I feel like this is so unfair and i didnt ask for this disease!!! so not only do I have to learn to live with it, because of the pain it causes I have to learn to live without my children as well and that does not seem fair!
Dear friend
I haven't had the chance to start at the beginning of this
site
When you wrote that your state took your babies
Your children from you makes me so angry and ever so sad
children look for their mommy no matter what

This place has helped educate me on so many levels
Their experience strength and hope

The hope you find a cure
or even the right medications to help
releive the pains

There is a two part for myself
I am on a mechanical level screwed
I am also screwed out of the neurological pain
that consumes my entire body
Espically my right back
Hands and feet
Some funky stuff happening
In medication forum sub:SCS
Unexplained stuff new crap
But very scary and disturbing
When I was on the medication Lyrica
I will never forget what the magic amount was
four tablets don't remember how many mils each tablet
This was for the neurological pain my hands and feet are experiencing
Then the worse thing ever being allergic to the medication
Broke out in blisters in mouth
Hands and feet skin changes that never returned back the way
I know my skin to be
And my telling you this is
In the latter part of your message
I need you to get this
I went and am still in a extreme depressive state
Never like when I was on Lyrica

Bottom line
I am only medicated for mechanical pain Opioids
A high dose
I have had to take custody of my granddaughter
Disclosed all the Meds I am on
Judge allowed me to take her until my daughter
works on her addiction problem

I am so sad for you
I don't know what to say
This I want you to know
I know what it is like to want to die
it's just so painful
And there is zero done for my hands and feet
Yet pictures don't lie
And that's what I had for my doctors
My blood work three scripts filled with an array
of test to figure out what's going on
The process of elimation and ruling out the possible causes
of my hands and feet bruise after unexplained pain in the area
a vein will swell then burst after filling and swelling then turn black and blue

I hate that this has happened to me and this great body
It was so lean and mean put men to shame what I could do
probably my own demise
Your desire not to give up the desire to live is my concern
Please get any help with this part of giving up
It is not an option for myself
And I am just broken up about what happened to you
You have no idea
My body giving up on me
I am not ready for that
I am still in a funk that is always underlying
Fight fighting what
This I would like to know
Fighting what
This monster pain
That opioids barely touch
because this body is allergic to so many medications
There is a study out there by a doctor Kevin Tracey of neurology
and I believe his study is a ticket to somewhere better
It just needs to come here in the USA
TRIALS ARE IN EUROPE
STRICT LAWS HERE IN THE USA NOT ALLOWING
THE SELECT FEW IN HIS STUDY
BUT A UNNAMED PERSON CURED
THIS IS NOT MEDICINE RELATED
BUT BY A DEVICE PLANTED ON THE NERVOUS SYSTEM
AND IS TWEEKING THE NERVES THAT ARE DESTROYED

My pain specialest shot my thunder down
when I brought it up to him
He gives out the Meds is my only answer to his defense
with how he reacted to the new information I just learned about

I keep going of track
Point
Please don't give into that state of giving up
My father commited suidide
I promised my four grow children
They will never find my body in that state
Never to fear
I know that kind of pain
I am still stuck in that funk
when the pain is so great it wakes me
at five in the morning
And cannot go back to sleep
I have to wait till at least seven in the morning
If I would to begin taking my Meds haphazardly
I would be screwed
I take my Meds faithfully
On time the same time everyday
Why you might ask
I am a recovering alcoholic and addict
Over twenty years now
My drug of choice is alcohol
I know what my first three drinks do to me
And respect where I am today
If I were to abuse my Meds
I'm not a pill person
Hate IT
but this is my life
No more life in a bottle
Grew up and took responsibility
Of ME
DON'T YOU GIVE UP OR GIVE IN
WE ARE ALL HERE FOR YOU JUST AS LONG
AS YOU KEEP COMING
LOVE
me
My your days be bright
__________________
someone who cares
eva
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